Relapsing Polychondritis National Institutes Of Health Clinical Trial

where to find a government trial

Relapsing Polychondritis National Institutes Of Health Clinical Trial

 

My story of where I found the Relapsing Polychondritis National Institutes Of Health Clinical Trial.  

Several people have asked me how do you find a government medical trial and how did I find the Relapsing Polychondritis National Institutes Of Health Clinical Trial?

My reply where to find a government clinical trial is to go online to this government website. 

The government website above is the homepage for the National Institutes Of Health Clinical Trials. 

The ClinicalTrials.gov webpage allows you to search clinical trials by condition/ disease, terms, and country. 

After you type in your search information into the Clinical Trials.gov web page the results will appear.

I became aware of The National Institutes Of Health Relapsing Polychondritis clinical trial from the Relapsing Polychondritis Organization. 

The Relapsing Polychondritis Organization posted The National Institutes Of Health, R.P. clinical trials on their website. 

Another member of the Relapsing Polychondritis Organization wrote about the R.P. Study on a Relapsing Polychondritis Facebook Group Page. 

I am a fan of support groups.

I realize the Relapsing Polychondritis Facebook Group does not replace medical support.

However, the Relapsing Polychondritis Facebook Page is a terrific place to for me to meet others with the same rare disease and to find out about ongoing treatments.

The Relapsing Polychondritis Facebook Group also offers me a wealth of resources, a virtual venue to share personal experiences with the rare disease Relapsing Polychondritis, a place to vent, offer other Relapsing Polychondritis member’s support and a place to ask others input.

Back to the Relapsing Polychondritis National Institutes Of Health Clinical Trial and how I applied;

  • I completed the health information the study requested
  • My doctors completed the National Institutes Of Health medical paperwork
  • My physicians sent my medical records to the National Institutes Of Health
  • I waited
  • I waited, about ten months
  • Testing dates are chosen

The National Institutes Of Health covered all of my medical costs. 

However, food, travel, and accommodation were not covered by the National Institutes Of Health study.

I was fortunate to stay The Edmond J. Safra Family Lodge at National Institutes Of Health. 

The Edmond J. Safra Family Lodge at the National Institutes Of Health offers a complimentary home-like place of respite for families and loved ones of adult patients who are receiving care at the NIH Clinical Center.

An enormous thank you to the Edmond J. Safra Foundation! 

I hope this HypoGal post has given you insight about, Relapsing Polychondritis National Institutes Of Health Clinical Trail.

You may find these Relapsing Polychondritis website pages helpful:

 

Health Resources:

 https://clinicaltrials.gov/

 https://clinicalcenter.nih.gov/familylodge/

 

Play It Forward, So Others Do Not Have To Rewind! 

 

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